September
8
Can I still have a gluten allergy even if I tested negative for celiac?
I just wanted to know if I can still have a gluton allergy of some kind even if my blood test said I don't have celiac disease. I am still recovering from H-pylori. I know gluton in general is hard to digest so with all my stomach problems could it just be that its hard to digest or an actual allergy?. I have been eating gluten free pasta and bread and I feel amazing afterwards which is so rare. I have been on a liquid diet for a long time because my stomach just won't work. However if I eat just gluten free solid foods I feel okay. Just looking for advice.
Ok, I hope I can help. First off, you CAN still have Celiac Disease even if you tested negative for several reasons:
1. You MUST be eating gluten for a significant amount of time prior to the test for the blood test to be accurate. If you are not eating gluten your body will not make the antibodies that the blood test is looking for.
2. Some people are IGA and IGG deficient. Meaning that although they may still have Celiac Disease, their body does not make the two major antibodies that is looked for in a Celiac blood panel.
3. The blood test was done wrong or the wrong antibodies were looked for. Not every lab understand how to dot he test, nor does every doctor know how to read the results.
Now. If you are feeling better on a gluten free diet, then that is a good indicator that you may have Celiac Disease. If you want my opinion, I'd reschedule the test (an experienced GI doc should be ordering these tests and they should understand and accept Celiac as a serious autoimmune disease–if they do not,f ind another doc!) I will list the diagnoses process and that may help. YOu can redo the blood work but you MUST be eating gluten! Consider it your last horrah!
Even if you dont have Celiac you could indeed have just an intolerance or an allrgy. If its an allergy you would need to see an allergist to get diagnosed bc if it is an allergy you may need to carry an epi-pen because you could run the risk of anaphalyatic shock if u accidently eat gluten.
Here is the testing info: let me know if I can be of any further help:
Blood Tests
A number of tests, sometimes collectively referred to as the Celiac Blood Panel, will aid the physician in diagnosis. The tests may include, but are not limited to:
·Serologic Tests
1.EMA (Immunoglobulin A anti-endomysium antibodies)
2.AGA (IgA anti-gliadin antibodies)
3.AGG (IgG anti-gliadin antibodies)
4.tTGA (IgA anti-tissue transglutaminase)
·Tolerance or Measure of Digestion/Absorption Tests
1.Lactose tolerance test.
2.D-Xylose test.
Return to top
2: Biopsy
In the event that clinical signs and laboratory tests indicate probable malabsorption, a biopsy of the small intestine [jejunal] is called for. In this test, a small flexible biopsy instrument is passed through a tube, down the throat, through the stomach and into the upper end of the small intestine where patchy, multiple snippets of tissue are gathered. The tube is removed and the tissue samples are examined under a microscope for signs of injury.
May 30th, 2007 at 11:18 am
We used to have a variety of plant foods before we narrowed down our grain choices… gluten allergies are more common because of this.
References :
May 30th, 2007 at 11:18 am
You are not allergic to gluten if you tested negative for celiac but you might have an allergy to something else in the make up of pasta and bread etc. Get tested for allergies and also be sure they test for other things at the docs office like dumping syndrome or lactose intolerance and any other stomach conditions.
References :
May 30th, 2007 at 12:22 pm
Ok, I hope I can help. First off, you CAN still have Celiac Disease even if you tested negative for several reasons:
1. You MUST be eating gluten for a significant amount of time prior to the test for the blood test to be accurate. If you are not eating gluten your body will not make the antibodies that the blood test is looking for.
2. Some people are IGA and IGG deficient. Meaning that although they may still have Celiac Disease, their body does not make the two major antibodies that is looked for in a Celiac blood panel.
3. The blood test was done wrong or the wrong antibodies were looked for. Not every lab understand how to dot he test, nor does every doctor know how to read the results.
Now. If you are feeling better on a gluten free diet, then that is a good indicator that you may have Celiac Disease. If you want my opinion, I'd reschedule the test (an experienced GI doc should be ordering these tests and they should understand and accept Celiac as a serious autoimmune disease–if they do not,f ind another doc!) I will list the diagnoses process and that may help. YOu can redo the blood work but you MUST be eating gluten! Consider it your last horrah!
Even if you dont have Celiac you could indeed have just an intolerance or an allrgy. If its an allergy you would need to see an allergist to get diagnosed bc if it is an allergy you may need to carry an epi-pen because you could run the risk of anaphalyatic shock if u accidently eat gluten.
Here is the testing info: let me know if I can be of any further help:
Blood Tests
A number of tests, sometimes collectively referred to as the Celiac Blood Panel, will aid the physician in diagnosis. The tests may include, but are not limited to:
·Serologic Tests
1.EMA (Immunoglobulin A anti-endomysium antibodies)
2.AGA (IgA anti-gliadin antibodies)
3.AGG (IgG anti-gliadin antibodies)
4.tTGA (IgA anti-tissue transglutaminase)
·Tolerance or Measure of Digestion/Absorption Tests
1.Lactose tolerance test.
2.D-Xylose test.
Return to top
2: Biopsy
In the event that clinical signs and laboratory tests indicate probable malabsorption, a biopsy of the small intestine [jejunal] is called for. In this test, a small flexible biopsy instrument is passed through a tube, down the throat, through the stomach and into the upper end of the small intestine where patchy, multiple snippets of tissue are gathered. The tube is removed and the tissue samples are examined under a microscope for signs of injury.
References :
I run a Celiac support group
http://www.csaceliacs.org
http://www.celiac.com
http://www.celiac.org