hi everyone
this is very tricky….I believe my daughter needs to cut out gluten and wheat out of her diet. However — I know that she loves her school lunches, and going to different parties may be difficult, etc.

my plan is to try to "wean" her slowly — hoping next year she will bring her own lunch everyday.

Right now, the only time she will be able to choose her own food will be at school lunch. Every other snack and meal will be controlled by me.

The question is this……we'll we see any changes or effects by a part-time gluten diet?
Her symptoms are: sensory issues, rashes, some anxiety/depression (not too bad though)…

Thank you!!

I know from experience and from a friend who has a problem with gluten that you cannot have a daily intake of foods containing gluten and/or wheat and hope her symptoms will go away. I know it is difficult and takes a lot of extra work, but for her symptoms to really go away, she needs all that stuff out of her body.

A friend of mine is so sensitive to gluten his wife even has to cook his foods with utensils that have not been used to cook foods with gluten. I'm glad your daughter's case is not as severe, but she really needs to get it completely out of her system. Sorry about that, but I figured you asked because you want an honest answer.

I also had rashes from a wheat intolerance and even one piece of bread every once in a while flared it right up. I'm sure you know there are other non-wheat flour foods available, they just aren't as fun to eat. Right now though, her eating is not about fun, it is about being healthy. I hated it (was 12 when I was diagnosed) but got used to it.

Good luck to you.

Karyn Seroussi and Ann Curry discuss Karyn’s son’s recovery from autism, using the gluten-free casein-free (gfcf) diet. Posted due to renewed interest after Jenny McCarthy’s book on the same subject.

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Some organic stores sell gluten free cookies. so what is gluten

Gluten is a protein that is present in some grains such as wheat, rye, oats, and barley. There are a number of people that have a gluten intolerance or have celiac disease. The only known treatment for celiac's is a gluten free diet.

see http://www.celiac.org for more information.

I saw a package of cookies in the store saying they were gluten free?

Are foods naturally gluten free or do companies design them that way?

I have Celiac Disease(Silly-Yak), a allergy to Gluten. Common gluten is in Grains Wheat, Rye, Barley, Spelt, Malt etc. There are Grains that do not have gluten like Rice, Quinoa, Corn, etc.
The cookies you saw were made from a "flour" that was gluten free.
There are tons of naturally Gluten Free foods, all Veggies, Fruits, Meats, Fish, Dairy, Eggs in their naturally state are 100% Gluten Free.
The complication of eatting when you need to be GF is many of pre-pared/packed foods have gltuen. You just have to stop & think out a cooking process when you eat out. Example a soup may have a thickner or be started with a Roux"(usually wheat flour) so will make you ill. Same with Gravies, sauces of all kinds.
Was this helpful or TMI? ;-}
Slainté (to your health)

I just wanted to know if I can still have a gluton allergy of some kind even if my blood test said I don't have celiac disease. I am still recovering from H-pylori. I know gluton in general is hard to digest so with all my stomach problems could it just be that its hard to digest or an actual allergy?. I have been eating gluten free pasta and bread and I feel amazing afterwards which is so rare. I have been on a liquid diet for a long time because my stomach just won't work. However if I eat just gluten free solid foods I feel okay. Just looking for advice.

Ok, I hope I can help. First off, you CAN still have Celiac Disease even if you tested negative for several reasons:

1. You MUST be eating gluten for a significant amount of time prior to the test for the blood test to be accurate. If you are not eating gluten your body will not make the antibodies that the blood test is looking for.

2. Some people are IGA and IGG deficient. Meaning that although they may still have Celiac Disease, their body does not make the two major antibodies that is looked for in a Celiac blood panel.

3. The blood test was done wrong or the wrong antibodies were looked for. Not every lab understand how to dot he test, nor does every doctor know how to read the results.

Now. If you are feeling better on a gluten free diet, then that is a good indicator that you may have Celiac Disease. If you want my opinion, I'd reschedule the test (an experienced GI doc should be ordering these tests and they should understand and accept Celiac as a serious autoimmune disease–if they do not,f ind another doc!) I will list the diagnoses process and that may help. YOu can redo the blood work but you MUST be eating gluten! Consider it your last horrah!

Even if you dont have Celiac you could indeed have just an intolerance or an allrgy. If its an allergy you would need to see an allergist to get diagnosed bc if it is an allergy you may need to carry an epi-pen because you could run the risk of anaphalyatic shock if u accidently eat gluten.

Here is the testing info: let me know if I can be of any further help:

Blood Tests
A number of tests, sometimes collectively referred to as the Celiac Blood Panel, will aid the physician in diagnosis. The tests may include, but are not limited to:
·Serologic Tests
1.EMA (Immunoglobulin A anti-endomysium antibodies)
2.AGA (IgA anti-gliadin antibodies)
3.AGG (IgG anti-gliadin antibodies)
4.tTGA (IgA anti-tissue transglutaminase)
·Tolerance or Measure of Digestion/Absorption Tests
1.Lactose tolerance test.
2.D-Xylose test.
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2: Biopsy
In the event that clinical signs and laboratory tests indicate probable malabsorption, a biopsy of the small intestine [jejunal] is called for. In this test, a small flexible biopsy instrument is passed through a tube, down the throat, through the stomach and into the upper end of the small intestine where patchy, multiple snippets of tissue are gathered. The tube is removed and the tissue samples are examined under a microscope for signs of injury.

Lawrence - you may be angry, but that is no reaon for insulting and abusive language to people who answer in good faith. The fact remains that there is a greater incidence of allergies today, than in the 50s and 60s.

I agree - surely the more that we stop kids having things as youngsters/babies like nuts, gluten etc.. the more the body will react to it when it is eventually introduced into their diets? It's like people who clean and clean and clean, you need to be able to build up some natural immunity to things, if we live somewhere sterile we'll never manage to do that!

That said it all…

Gluten has a lot of potential results unrelated to celiac, for example, migraines, acne, arthritis, and many other symptom sets. It's also implicated in a fair number of mental disorders.

Families that have celiacs in them often have other gluten intolerants with other conditions as well.

Some people go gluten free to test whether their symptoms (not celiac) go away, find they do, and stay gluten free.

Is this disease something that could eventually kill someone if they occasionally eat bread or wheat at the young age of 24?

A coeliac that constantly goes against their diet can eventually suffer from bowel cancer. I've been told however that having something every once in a while, very occasionally is alright but I wouldn't make a habit of it. I was diagnosed with Coeliac disease a couple months after I was born so I was brought up to stick to my diet, sometimes I would have something that I'm not supposed to but I always regret it afterwards.

I have 2 children with Autism and many friends have their children on the GFCF diet. It sounds pretty tough. But I was looking at some of the symptoms I am thinking I want to go to a doctor to get myself checked out.

You can get blood tests done by your doctor and you might get an endoscopy done after that. It is still possible to test negative to celiac disease and then go gluten free and find out some symptoms clear up. But get tested first. If your children are eating GFCF, it is just as easy to eat the same foods as them anyway. I have been GF for over 5 years and there are very few foods that can't be made GF that taste as good or better than the gluten containing version.

i also have migraines and fibromyalgia and kidney disease and ibd. the last word is suppose to be diverticulitis in the question. i need to lose weight and am having a hard time getting these diets to work together and i'm just getting bigger and bigger even though i still exercise. i also suffer from a tilted pelvis and spinal stenosis and radicuopothy.

Celiac disease is an autoimmune intestinal disorder, whose specific trigger is gluten. There are several long term conditions that can develop if your Cd is untreated. Among them are Vitamin and mineral deficiencies, Iron anemia, nervous systom disorders, and lactose intolerance. Fibromyalgia is loosely linked to CD.

Unfortuantely, the only cure/treatment for CD is to live a gluten-free diet.

Gluten-Free Foods